Since his diagnosis he has been fairly healthy. He had a period of 1 1/2 years where he was very sick. In that time he was hospitalized 3 times for IV antibiotic therapy, while battling psuedomona's infections (psuedomona's is a very bad infection in CF patients) We are currently battling MRSA infections in his lungs on a regular basis and are once again battling the weight issues. Every day is a constant up hill battle to just keep him healthy. He takes 15 medications a day and does 40 minutes of chest therapy a day. ALL JUST TO STAY HEALTHY!
We hope and pray everyday that they will find a cure for this disease. We are so close to it! Unfortunalty all the promising medications they are coming up with are gene specific, which means they only work for people with certian gene mutations (and there are over a 1,000 different mutations for CF), and so far none of them will work for Zach's mutations. It cost millions of dollars to try to find the right combination of things that can fix the problem in CFers (a faulty sodium-chloride channel in the cells) The Cystic Fibrosis Foundation works so hard for our kids to help find a cure and to provide assistance to those families who can't afford the are their kids need. That is why we walk with Great Strides every year to help raise much needed funds.